How to Get Researchers to Notice an Ultra-Rare Disease

Image credit: Laura RiedelKathy and Gary Brewer shortly before their marriage in 1998. That same year he developed the rare illness that led to his death in 2007.(Published originally in the Washington Post) It wasn't until she read her husband's autopsy report that Kathy Brewer learned his diagnosis -- a disease so rare that not one doctor had figured it out. His illness began in 1998, the year Kathy, then 38, and, Gary Brewer, then 58, got married.
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